I am at the Cancer Centre waiting to see my oncologist and she is 45 minutes behind schedule. I don't know why I kill myself to get to these appointments on time anymore because it seems like she is never on time.
At least this gives me time to finally write down my experience with my surgery. Deciding to get the mastectomy was extremely difficult and it was a decision that I was desperately trying to avoid. But once I realised that it was the only choice, I knew I was making the right decision and all of a sudden I was very calm and not nervous or devastated. I was extremely busy the few days before the surgery. I thought that I would be too tired or sore to do anything.
Kevin drove me to the General Hospital Critical Care wing really early on Nov. 27. We had to be there at 6:30 in the morning. I checked in and got changed into my gown and booties. Then Kevin and I met with a nurse who told me that my surgery was at 8:00. This surprised me because I was told that it would take all morning to prep me for surgery. I was happy that the surgery was so early because it meant less waiting.I kissed Kevin goodbye and climbed into a bed. They wheeled me into the corridor outside my operating room (room #4). This is where I began to get nervous. I was scared of the anesthesia and worried that I wouldn't wake up. I started to bawl and thought of Grace. The anesthesiologist came and spoke to me and then my surgeon came and signed my right breast (this is to ensure that they remove the correct breast). The nurse then wheeled me into the operating room and preped me.
This is what I remember:
I was moved from my bed to the operating table. The anesthesiologist inserted my I.V. while the nurse introduced me to the team and gave me an oxigen mask. She then put sticky sensors on my body to monitor my vitals. The anesthesiologist injected a drug into my I.V. and told me it was to make me relax. He then said that he would tell me before he gave me the drug that would knock me out. I was pleased with this because I planned to feel myself up one more time. THAT'S ALL I REMEMBER!! He may have warned me and I may have felt myself up but I don't have any memory of it. The next thing I remember is waking up and the nurse telling me I did great while she wheeled me out of the O.R. I thought that I would be in a lot of pain and be upset after my surgery. I also thought that I would feel "different" but in reality I felt little pain and I was the still the same person. Sure I was less one breast but now I am considered CANCER FREE! I remember smiling when I realised this.
I was brought to a large critical care room where I was monitored for about an hour. My temperature was low, so they put a plastic blanket over me and set up a heater to blow under it. Once my temperature was back up I was moved to another room monitoring room. I was here for another couple of hours. The nurses wrapped a tension bandage around my chest and helped me get dressed. They showed me the exercises that I have to do to get my right arm's mobility back to what it was before surgery. I remember a nurse asking me if my husband was good during all of this drama. I started bawling again and tried to tell the nurse between sobs that Kevin was the BEST HUSBAND and that he loved me so much (I don't think I thank him enough for all his absolutely amazing support).
The part where I left this area and was reunited with Kevin is all a little fuzzy. I do remember going home and being reunited with Grace who, a few hours before, I was worried I would never see again.
Oh, my patient designated nurse just walked by and said that I am next. She also said that the pathology from my tissue is back. Ahhhh! I'm suddenly very nervous. I better run. Next, I'll write about my experience once I got home and when I finally had my bandages removed 5 days later.
Tuesday, December 8, 2009
Thursday, November 26, 2009
My Surgery is tomorrow
I know that this is very last minute to announce my surgery but nothing was set in stone until yesterday. I have decided to go forward and have the mastectomy with a sentinel node procedure. This KILLED me to have to make this decision but I know that it is the right one and once it had finally been made I felt like a weight had been lifted off of me. Because I have multiple (two) malignant tumours in my breast and because I am HER2+ the best chances to avoid a local recurrence is to have the mastectomy. The odds of recurrence after my mastectomy are around 2-5% in my lifetime whereas the odds with the lumpectomy are 2% per year. I plan to live into my 90's, so 60 years from now my odds of recurrence would be 120% with the lumpectomy.
I will be discharged the same day and I will feel pretty out of it for days due to the pain killers. I will be in some pain for a long time (it could be as long as a year) and I won't be able to pick up Grace for about 6 weeks. I'm looking for volunteers to help me take care of Grace, so please contact me if you are willing.
In the new year I will start my radiation treatment which is daily and will last 5 weeks. Then I will have to wait at least a year before I can think about reconstruction. I will probably remove my other breast down the road once I know that I won't have any more kids and then have that breast reconstructed too so that I can be symmetrical again. The good news is that I will have the perkiest boobies no matter how old I get. The bad news is I won't have any sensation in them.
I'm a little scared about the surgery and how much pain I'm going to be in afterwards and how my life will be on hold until I have recovered. I'm worried I won't be able to find enough volunteers to take care of Grace and I know I won't be able to take care of her by myself.
I'm sad that it has had to come to this and I'm sure I will be devastated but I have been too busy stocking up the fridge, doing chores and preparing for tomorrow to really be that upset or let the reality of it sink in. I know that I will feel like a freak show when I have to look at myself in the mirror but my beautiful husband has been nothing but the best. He says that he could care less about what I will look like and (even if he's lying) he's doing a good job at making me feel a little less ugly.
I've got to go now. I have laundry to fold and a weeks worth of meals to make.
See you on the other side.
LOVE!!!!!
Daiva
I will be discharged the same day and I will feel pretty out of it for days due to the pain killers. I will be in some pain for a long time (it could be as long as a year) and I won't be able to pick up Grace for about 6 weeks. I'm looking for volunteers to help me take care of Grace, so please contact me if you are willing.
In the new year I will start my radiation treatment which is daily and will last 5 weeks. Then I will have to wait at least a year before I can think about reconstruction. I will probably remove my other breast down the road once I know that I won't have any more kids and then have that breast reconstructed too so that I can be symmetrical again. The good news is that I will have the perkiest boobies no matter how old I get. The bad news is I won't have any sensation in them.
I'm a little scared about the surgery and how much pain I'm going to be in afterwards and how my life will be on hold until I have recovered. I'm worried I won't be able to find enough volunteers to take care of Grace and I know I won't be able to take care of her by myself.
I'm sad that it has had to come to this and I'm sure I will be devastated but I have been too busy stocking up the fridge, doing chores and preparing for tomorrow to really be that upset or let the reality of it sink in. I know that I will feel like a freak show when I have to look at myself in the mirror but my beautiful husband has been nothing but the best. He says that he could care less about what I will look like and (even if he's lying) he's doing a good job at making me feel a little less ugly.
I've got to go now. I have laundry to fold and a weeks worth of meals to make.
See you on the other side.
LOVE!!!!!
Daiva
Monday, November 2, 2009
MRI results aren't that good
So the results are back and they aren't what either the surgeon or I was hoping for. Not only is the tumour the same size as it was before I started chemotherapy but also there are two new masses. My surgeon thinks that my tumour was actually bigger than they thought before (because we could feel the mass shrink during chemo) and a biopsy on the new mass is scheduled for this Wednesday.My surgery may be pushed back while we wait for the results of the biopsy. If the results aren't good then I will most likely require a mastectomy.
I'd like to send out my special thoughts to my friend Laura, who just had a double mastectomy the other day. I love you and I hope you are doing well.
I'd like to send out my special thoughts to my friend Laura, who just had a double mastectomy the other day. I love you and I hope you are doing well.
Tuesday, October 20, 2009
Eight Chemo Treatments Behind Me
Now that the side effects are wearing off from my eighth chemotherapy treatment I feel like I can finally say that I'm done. It's hard to believe that my first treatment was May 15th and now I am finally through it.
Tomorrow I have an MRI and my surgery is scheduled for Friday, November 13th. My surgeon is encouraged with how my tumour seems to have responded to the chemotherapy. We will know for sure after the MRI but he thinks that I will not need a mastectomy. Yay!
I found out that I will be considered "cancer free" once I have my surgery. Another yay!
Tomorrow I have an MRI and my surgery is scheduled for Friday, November 13th. My surgeon is encouraged with how my tumour seems to have responded to the chemotherapy. We will know for sure after the MRI but he thinks that I will not need a mastectomy. Yay!
I found out that I will be considered "cancer free" once I have my surgery. Another yay!
This is a picture of me getting my chemotherapy drugs. I have ice mitts on my feet and hands to keep my circulation slow so that the drugs don't go to my fingers and toes. If it had then I could have lost my nails.
This is a picture of me ringing the Victory Bell in the Chemo Ward at the General Hospital.
Friday, October 16, 2009
Thanks Telus and Rethink Breast Cancer
I am writing this post from my NEW BLACKBERRY that was given to me by Telus and an organization called "Rethink Breast Cancer". The service will be covered for a year, free of charge, by Telus. This is through a program called "Technology + Treatment", who's aim is to provide BlackBerries to young women with breast cancer so that they can manage all their appointments and procedures. I've been lugging around a huge binder until now, so the phone comes as a great relief. I also will be able to post more and respond to everyone faster now!
Thank you Telus and Rethink Breast Cancer!
Thank you Telus and Rethink Breast Cancer!
Sunday, September 13, 2009
My hair is growing back
I am excited to try new hairstyles that I have always been too chicken to try. I've ALWAYS had the same long hairstyle and now I am going to be able to experiment with short cuts. I also can't wait to see if my hair grows back in straight or curly (so far it looks staight) and if it will be brown or if I will have any new grey hairs.
Thursday, September 10, 2009
Genentics test results are in....
...and my DNA is negative for the gene mutation that causes breast cancer!!!!!!!!!! I am so happy I could scream from from the rooftops! Wooooohooooooo!!!!!
I was tested for the mutation for two reasons. The first being that if I were positive for the mutation then the surgeons would recommend a double mastectomy and the removal of my ovaries to help minimize my risk of a recurrence of cancer. The second reason would be to determine whether the other women in my family would carry the mutation and therefore be at a higher risk of getting cancer too. I was terrified that the results were going to come back positive and then I would have to worry about Grace being positive too (she would have had a 50% chance that I passed on the mutation). I am so relieved now that I know that I haven't passed on a "Cancer Gene" to Grace and that hopefully, with the right lifestyle, she will never have to go through this. That's the only thing that really matters to me.
On another note, I breezed through the side effects of my last treatment. I had a few really rough days but they weren't as severe as the treatment before. Only two more chemo treatments. Wow! I can't believe how close I am getting to the end of these treatments. Next month I have an MRI to find out how well the chemo did at destroying my tumour. I can no longer feel a lump but the MRI will tell us what really is going on and then my surgeon will be able to tell me what kind of surgery to prepare for.
It's been a really good day. I'm feeling really good.
LOVE FROM ME TO YOU WHERE EVER YOU ARE. XO.
I was tested for the mutation for two reasons. The first being that if I were positive for the mutation then the surgeons would recommend a double mastectomy and the removal of my ovaries to help minimize my risk of a recurrence of cancer. The second reason would be to determine whether the other women in my family would carry the mutation and therefore be at a higher risk of getting cancer too. I was terrified that the results were going to come back positive and then I would have to worry about Grace being positive too (she would have had a 50% chance that I passed on the mutation). I am so relieved now that I know that I haven't passed on a "Cancer Gene" to Grace and that hopefully, with the right lifestyle, she will never have to go through this. That's the only thing that really matters to me.
On another note, I breezed through the side effects of my last treatment. I had a few really rough days but they weren't as severe as the treatment before. Only two more chemo treatments. Wow! I can't believe how close I am getting to the end of these treatments. Next month I have an MRI to find out how well the chemo did at destroying my tumour. I can no longer feel a lump but the MRI will tell us what really is going on and then my surgeon will be able to tell me what kind of surgery to prepare for.
It's been a really good day. I'm feeling really good.
LOVE FROM ME TO YOU WHERE EVER YOU ARE. XO.
Saturday, August 29, 2009
Taxotere 2
Sixth chemo treatment down and only 2 more to go. I got quite a few people contacting me very concerned after my last post and I'm sorry if I got people worked up. The Taxotere is definitely different from my earlier treatments with some positives (no nausea and my hair is already starting to sprout again) and some negatives (taste buds are messed up, my tongue feels like dry leather, sore bones, nails are sensitive, fatigue, eyebrows and lashes are falling out). But most of the negatives start about 4 days after my chemo treatment and last less then a week and then I am back to almost 100% again. So all is good.
I now only take the Percocet at night after Grace has gone to bed for only about 3 nights and then the bone pain is mild enough to take Tylenol instead. I love the Percocet because it feels like I've had a few glasses of wine and then I have a GREAT night's sleep. I could see how people can get addicted to it :)
Grace started walking in the last few weeks and she's been a HOOT! I love her so much and she knows how to keep me "over the moon happy". She rubs and kisses my peach fuzz head and when I wear my wig she says "hat". I've put my wig on her a couple of times and it's hilarious!!!!!!! I promise to post a picture of that soon.
Now I have some really bad news that has truly floored me. A very loved friend of mine has just been diagnosed with cancer. This is certainly not something that I wanted us to have in common. She is around my age and a wonderful woman. She has always been willing to help me out during my treatments and now I am so sorry that she is going to have to go through this too but I know that she will get through it with flying colours. I don't know why, but there are so many cases of young woman getting breast cancer lately. There's got to be something up with that. Girl, you know who you are, and I love you. My thoughts are with you and I hope I can be there for you as well as you have been there for me.
I now only take the Percocet at night after Grace has gone to bed for only about 3 nights and then the bone pain is mild enough to take Tylenol instead. I love the Percocet because it feels like I've had a few glasses of wine and then I have a GREAT night's sleep. I could see how people can get addicted to it :)
Grace started walking in the last few weeks and she's been a HOOT! I love her so much and she knows how to keep me "over the moon happy". She rubs and kisses my peach fuzz head and when I wear my wig she says "hat". I've put my wig on her a couple of times and it's hilarious!!!!!!! I promise to post a picture of that soon.
Now I have some really bad news that has truly floored me. A very loved friend of mine has just been diagnosed with cancer. This is certainly not something that I wanted us to have in common. She is around my age and a wonderful woman. She has always been willing to help me out during my treatments and now I am so sorry that she is going to have to go through this too but I know that she will get through it with flying colours. I don't know why, but there are so many cases of young woman getting breast cancer lately. There's got to be something up with that. Girl, you know who you are, and I love you. My thoughts are with you and I hope I can be there for you as well as you have been there for me.
Saturday, August 15, 2009
Taxotere one
On August 7th I had my first Taxotere chemo treatment. The treatment is slightly different than my first four treatments because I have to wear big ice mitts on my hands and feet. Taxotere can cause your fingernails to become brittle and sometimes fall off, so the idea is if your hands and feet are iced during the drip than the blood won't circulate to your fingers and toes as much. My favourite past time during the early treatments was doing Sudoku puzzles but the big funny mitts now make that impossible. I think I'm going to bring my DVD player next time.
The following day I had a nurse come and give me my Neulasta injection. Three thousand dollars was injected into my arm and the side effect I am lucky enough to enjoy from it it BONE PAIN. Not flowers, rainbows or Lucy in the sky with diamonds... but BONE PAIN!
The first few days after my treatment were fine. I was on a steroid to help ease me into the fatigue until Tuesday. On Wednesday I was no longer on the steroid so I was hit with exhaustion. Not only that, but the bone pain was so strong I thought that I would take one of the pain killers that I had been prescribed - Percocet! An hour after taking the percocet I was changing Grace's diaper and started to pass out. I knew I was weak so I put my body over Grace so she wouldn't roll off the change table...then I passed out. It was very scary! I woke up dripping in sweat and exhausted. I finished changing Grace and then plunked her in front of the TV in my room. She watched Sesame Street and I fell unconcious. I now know not to take percocet during the day when alone with Grace.
The following day I had a nurse come and give me my Neulasta injection. Three thousand dollars was injected into my arm and the side effect I am lucky enough to enjoy from it it BONE PAIN. Not flowers, rainbows or Lucy in the sky with diamonds... but BONE PAIN!
The first few days after my treatment were fine. I was on a steroid to help ease me into the fatigue until Tuesday. On Wednesday I was no longer on the steroid so I was hit with exhaustion. Not only that, but the bone pain was so strong I thought that I would take one of the pain killers that I had been prescribed - Percocet! An hour after taking the percocet I was changing Grace's diaper and started to pass out. I knew I was weak so I put my body over Grace so she wouldn't roll off the change table...then I passed out. It was very scary! I woke up dripping in sweat and exhausted. I finished changing Grace and then plunked her in front of the TV in my room. She watched Sesame Street and I fell unconcious. I now know not to take percocet during the day when alone with Grace.
The flu
The end of July and the beginning of August was pretty crazy for me. Grace got the flu which means that of course I soon was really sick too. I was fine for a few days until I got a fever. If you get a fever when you are in the middle of chemo treatments then you have to contact your doctor IMMEDIATELY. It was after business hours so I had to go to the emergency room. When I arrived at the ER the nurse told me (even though I informed her I was a chemo patient) that I would have to wait about 4 hours in the waiting room with all the other sick people so I opted to go home and sleep in my own bed and went to the Cancer Centre the next morning. I had to get fluids through I.V. and loads of blood work. My first blood results were low and I was told that if the second results were as low then I would be admitted to the hospital for 5 days. I immediately thought of Grace and not being able to see her, then I started to cry. Then I was told my hemoglobin levels were low and that would mean I would need a blood transfusion -WHAT!!!??? All this for a flu? Well, after a few more hours of waiting for 2nd blood results and some hospital food I was finally told that I could go home with an antibiotic. My hemoglobin's were actually fine, my white blood cell count was low but okay. YAY!
Thursday, July 23, 2009
Army of Women
I finally joined the "Army of Women" today (www.armyofwomen.org). Their goal is to have more than a million women join their group so that they can get information on breast cancer studies and be available for research. I urge all you ladies out there to join.
Monday, July 20, 2009
Half Way
So, I've finished my fourth chemo treatment. There were a few hiccups this time involving low levels in my blood work that is always taken the day before my treatment. But, I had more blood drawn the morning of my chemo treatment and the levels had come up enough for me to go ahead with the chemo.
This was the first treatment where the nurse had to insert the "gripper" (needle with tubes) into my port. I used Emla Cream a few hours before to freeze the area so it wouldn't hurt so much but it still felt like she was jamming a pin into my chest. It didn't actually hurt any more than a regular needle but the nurse has to use a lot of force to press the gripper into the port and that is a little unusual.
I'm not really thrilled about being halfway through my treatments because I know that this means that I will be starting the Taxotere in less than 3 weeks. I've heard horror stories about my taste buds changing so much that food won't be satisfying, the fatigue will be WAY WORSE and my eyebrows and lashes (which I have not lost yet) will finally fall out. I've heard about all these terrible possible side effect but the nurse on Friday said that some patients find the Taxotere easier. We will see.
I will also start taking the Herceptin which I will continue to take for 18 treatments (I've calculated that I will be finished the Herceptin treatments next August). I will be getting another echo cardiogram this week to make sure that my heart is strong enough to handle it.
Thank you to all of you who have fed my family, watched Grace for me and sent me your messages and well wishes. I couldn't get through this with out your support. I love you all.
This was the first treatment where the nurse had to insert the "gripper" (needle with tubes) into my port. I used Emla Cream a few hours before to freeze the area so it wouldn't hurt so much but it still felt like she was jamming a pin into my chest. It didn't actually hurt any more than a regular needle but the nurse has to use a lot of force to press the gripper into the port and that is a little unusual.
I'm not really thrilled about being halfway through my treatments because I know that this means that I will be starting the Taxotere in less than 3 weeks. I've heard horror stories about my taste buds changing so much that food won't be satisfying, the fatigue will be WAY WORSE and my eyebrows and lashes (which I have not lost yet) will finally fall out. I've heard about all these terrible possible side effect but the nurse on Friday said that some patients find the Taxotere easier. We will see.
I will also start taking the Herceptin which I will continue to take for 18 treatments (I've calculated that I will be finished the Herceptin treatments next August). I will be getting another echo cardiogram this week to make sure that my heart is strong enough to handle it.
Thank you to all of you who have fed my family, watched Grace for me and sent me your messages and well wishes. I couldn't get through this with out your support. I love you all.
Friday, July 10, 2009
Financial Burdens
As some of you know, I was denied employment insurance for my illness because of some misunderstandings when I was coming off my parental E.I. I disagreed with the decision and filed an appeal. Today I got a phone call from a Service Canada employee saying that they reconsidered my claim and it was finally APPROVED!!!! Yay! This is a big relief and I big load off my mind. I will have to wait a few more weeks for a payment but at least I know it is coming.
I have been getting an injection in my stomach every 28 days to shut down my ovaries so they won't release eggs during my chemo treatments. This has caused my body to go into temporary menopause with all the exspected side effects. I don't get a period and I get many hot flashes a day. It gets uncomfortable when I am wearing my wig on a warm day. But I'm doing this in hopes of preserving my fertility, so I just think of how this isn't nearly as uncomfortable as the future pregnancy and childbirth that I hope to be able to experience in a few years. By the way, this injection would cost $420 a treatment (x8 treatments = $3360) if it weren't for the Ontario Drug plan. My personal cost: $2 per treatment.
Another expensive drug that I am going to require is Neulasta. I will need to get 1 dose of Neulasta after each of my last 4 chemo treatments. Neulasta helps my bone marrow produce more white blood cells which will then help protect my body from infections. Each dose of Neulasta costs $3000!!!!!!!!!!!!!!!!!!!! And I need 4. That's a total of $12,000!!!!!!! Thank God Kevin has medical insurance which will cover 80% of the cost. I have been approved for a subsidy that will cover the other 20%.
I've never been more appreciative of our health care system here in Canada. If Kevin and I lived somewhere without universal health care then we would be completely wiped out financially. Things are very difficult still...but not nearly as bad as they could have been.
That's it for now. Just one last big THANK YOU to my wonderful husband who has been fantastic. He has taken on so much responsibility as well as all of the financial burden and I don't tell him enough how much I love him and appreciate everything he does for his family. I love you Kevin!
I have been getting an injection in my stomach every 28 days to shut down my ovaries so they won't release eggs during my chemo treatments. This has caused my body to go into temporary menopause with all the exspected side effects. I don't get a period and I get many hot flashes a day. It gets uncomfortable when I am wearing my wig on a warm day. But I'm doing this in hopes of preserving my fertility, so I just think of how this isn't nearly as uncomfortable as the future pregnancy and childbirth that I hope to be able to experience in a few years. By the way, this injection would cost $420 a treatment (x8 treatments = $3360) if it weren't for the Ontario Drug plan. My personal cost: $2 per treatment.
Another expensive drug that I am going to require is Neulasta. I will need to get 1 dose of Neulasta after each of my last 4 chemo treatments. Neulasta helps my bone marrow produce more white blood cells which will then help protect my body from infections. Each dose of Neulasta costs $3000!!!!!!!!!!!!!!!!!!!! And I need 4. That's a total of $12,000!!!!!!! Thank God Kevin has medical insurance which will cover 80% of the cost. I have been approved for a subsidy that will cover the other 20%.
I've never been more appreciative of our health care system here in Canada. If Kevin and I lived somewhere without universal health care then we would be completely wiped out financially. Things are very difficult still...but not nearly as bad as they could have been.
That's it for now. Just one last big THANK YOU to my wonderful husband who has been fantastic. He has taken on so much responsibility as well as all of the financial burden and I don't tell him enough how much I love him and appreciate everything he does for his family. I love you Kevin!
Friday, June 26, 2009
3rd Chemo....DONE!
So today was my third chemo treatment. I noticed that I recognized a lot of the other people in the ward from my past two treatments. I found out that the lady I talked to last time found her missing dog and that another lady, that I talked to and smiled at during my first treatment, was named Julia. I also met a woman, Lisa, who was there for her first treatment. Although it is awful to find out you have cancer, it is very nice meeting men and women who are going through the same thing and therefore relate to them. For example, I walked by a woman outside the hospital who had a bald head and a bandage on her chest (from her port insertion), I had a hat on for a change (no wig) and a bandage on my chest from my port insertion last Friday (which went REALLY smoothly by the way...it was like being at the spa compared to the P.I.C.C. insertion). Anyway, back to my story, all I did was tap my chest where my bandage is when we walked by each other and we gave each other HUGE smiles. We are part of the same club or SISTERHOOD if you will.
Having cancer has definitely changed my outlook on EVERYTHING in my life for mostly the better; everyone I meet in the cancer centre (nurses, volunteers, patients...) have also been the most amazing, warm, caring and friendly people. I see way more smiles than tears in the ward.
The ward also has a bell hanging from the wall by the exit. I think it's called the VICTORY bell, or something like that. You ring it after your last chemo treatment. A man got to ring the bell today and everyone clapped and cheered for him. It was really nice to see and I can't wait until I get my turn.
The other thing I can't wait for is the RELAY FOR LIFE. I don't know if I will get to do it next year or the year after that, but I can't wait for when I can walk the "survivor" lap with my mother...I cry happy tears just thinking about how awesome that will be and how proud I will be of my victory with this disease.
I'll write soon. I'm sorry that I have been so bad at writing lately.
Having cancer has definitely changed my outlook on EVERYTHING in my life for mostly the better; everyone I meet in the cancer centre (nurses, volunteers, patients...) have also been the most amazing, warm, caring and friendly people. I see way more smiles than tears in the ward.
The ward also has a bell hanging from the wall by the exit. I think it's called the VICTORY bell, or something like that. You ring it after your last chemo treatment. A man got to ring the bell today and everyone clapped and cheered for him. It was really nice to see and I can't wait until I get my turn.
The other thing I can't wait for is the RELAY FOR LIFE. I don't know if I will get to do it next year or the year after that, but I can't wait for when I can walk the "survivor" lap with my mother...I cry happy tears just thinking about how awesome that will be and how proud I will be of my victory with this disease.
I'll write soon. I'm sorry that I have been so bad at writing lately.
Tuesday, June 16, 2009
100%
I'm feeling GREAT! Everyone is asking me how I am feeling and probably expecting me to be under the weather but it's just the opposite. I'm happy, I'm felling fantastic and everything is wonderful. Grace is the funniest little thing and keeps me laughing. She learned to blow kisses and gives me kisses on the top of my bald head. She learned to say "fishy" the other day and says it all the time.
We just got some beautiful photos back from Tiana Kluchert who volunteered to do a photo shoot with me and Gracie just before my hair began to fall out. I'm very happy with them and urge any one who is interested to contact her at http://www.littlepixels.ca/.
Friday, June 5, 2009
Chemo session 2 complete. P.I.C.C. line gone.
So I've had my second chemo treatment and now I'm home waiting to see how sick I'm going to get. My mom came with me to keep me company and we had to wait a long time with just a saline hook up because it took forever for the pharmacy to bring the nurse my chemo drugs. We met some nice ladies. One who is finished all her chemo treatments (her hair is probably about 3 inches long now)...she was fantastic. Then I met another nice woman who was lying next to me in the chemo ward. She was worried because she lost her dog today right before her chemo appointment so she had to leave while her neighbors looked for him. I hope they found him. My chemo buddy, Colleen, was also there today. She gave me some great chemo hats for sleeping in and also some bandannas. Mom also found some pretty scarves in the donation bin and they will be great on a hot summer day.
Mom came back home with me and we relieved my sister from Grace watching duty so she could go home and walk her dog. Mom went and picked up Thai food for me. We got my favourite curry dish plus some pad Thai. The curry seemed a little hot for my sensitive tummy but the pad thai was perfect. Mmmmmmm.
I got a letter today from Service Canada stating that I was denied my 15 week sick E.I. claim because I already got 50 weeks of Parental Leave. This seems discriminatory because if a father had been the one who got sick rather than a mother then he would have qualified for sick leave. The good news is when I called the Service Canada help line this afternoon a very helpful man, Rohan, spent a lot of time studying my file and told me that I could appeal if I have to but he doesn't think that will be necessary. There seems to be something in the computer that says my file is still active and the letter I received might be a mistake. Rohan also said that you will always getting $$$ that you are entitled to and that if you aren't entitled to the money it doesn't matter how hard I try....He said I am entitled to the leave....I hope Rohan is right. In the mean time, I have to fill out the forms for disabbility (O.D.S.P). There are a lot of forms and I need to get doctors to fill out forms too. Once I apply for O.D.S.P. it will take around 4 months to activate the payments. So, I really need the sick leave to cover me until O.D.S.P. comes in.
In other news, my memory is getting REALLY bad. Please don't hold it against me if I don't call you when I'm supposed to or I forget a conversation that we had. The memory loss is WAY worse with chemo than it was with pregnancy or the sleep deprivation from taking care of an infant. My personal nurse says that she thinks that cancer patients get "chemo brain" as a coping mechanism. Whatever the case, I am very concerned about how dumb I am getting.
Mom came back home with me and we relieved my sister from Grace watching duty so she could go home and walk her dog. Mom went and picked up Thai food for me. We got my favourite curry dish plus some pad Thai. The curry seemed a little hot for my sensitive tummy but the pad thai was perfect. Mmmmmmm.
I got a letter today from Service Canada stating that I was denied my 15 week sick E.I. claim because I already got 50 weeks of Parental Leave. This seems discriminatory because if a father had been the one who got sick rather than a mother then he would have qualified for sick leave. The good news is when I called the Service Canada help line this afternoon a very helpful man, Rohan, spent a lot of time studying my file and told me that I could appeal if I have to but he doesn't think that will be necessary. There seems to be something in the computer that says my file is still active and the letter I received might be a mistake. Rohan also said that you will always getting $$$ that you are entitled to and that if you aren't entitled to the money it doesn't matter how hard I try....He said I am entitled to the leave....I hope Rohan is right. In the mean time, I have to fill out the forms for disabbility (O.D.S.P). There are a lot of forms and I need to get doctors to fill out forms too. Once I apply for O.D.S.P. it will take around 4 months to activate the payments. So, I really need the sick leave to cover me until O.D.S.P. comes in.
In other news, my memory is getting REALLY bad. Please don't hold it against me if I don't call you when I'm supposed to or I forget a conversation that we had. The memory loss is WAY worse with chemo than it was with pregnancy or the sleep deprivation from taking care of an infant. My personal nurse says that she thinks that cancer patients get "chemo brain" as a coping mechanism. Whatever the case, I am very concerned about how dumb I am getting.
Thursday, June 4, 2009
Itchy Scalp
So my head is super itchy. My little one inch long hairs are falling out in little clumps and I have to wear a scarf on my head when I go to bed to try to avoid waking up with hair all over my pillow. My scalp hurts a little - it kind of feels like when you take your hair down after having it up in a pony tail all day but it doesn't go away - at least not until my hair has finished falling out.
I went to CHEO today for genetics testing. I had to get my blood drawn in the CHEO blood lab and it was so sad to see all the little kids coming out crying after their blood work. There were a few brave little guys that were very proud of themselves for not crying...very cute. There was also a little girl, almost two years old, that reminded me so much of Grace...and then I found out her name was Grace too. She cried when it was her turn. Poor thing.
This afternoon I had to go to the General Hospital to get more blood drawn. I will have to do this the day before every chemo treatment to make sure that my white blood cell count isn't too low. It was the first time I actually watched as my blood was taken because the nurse was able to draw it directly from my P.I.C.C. line (I don't usually watch because I don't like to see the needle in my arm).
Grace came with me to the General hospital and was blowing kisses to the nurses, volunteers and the other patients in the chemo ward waiting room. She learned to do this the other night and now can't get enough of it. It was a riot. Everyone was laughing which just encouraged her to keep going. She's the light of my life.
Tomorrow is chemo. I hope it goes as well as last time, if not better. My personal nurse says there is no reason to expect it to be any worse than last time for the next 3 sessions. I'm going to picture the chemo drugs shrinking and disolving my tumor until it is nothing.
LOVE! Daiva :)
I went to CHEO today for genetics testing. I had to get my blood drawn in the CHEO blood lab and it was so sad to see all the little kids coming out crying after their blood work. There were a few brave little guys that were very proud of themselves for not crying...very cute. There was also a little girl, almost two years old, that reminded me so much of Grace...and then I found out her name was Grace too. She cried when it was her turn. Poor thing.
This afternoon I had to go to the General Hospital to get more blood drawn. I will have to do this the day before every chemo treatment to make sure that my white blood cell count isn't too low. It was the first time I actually watched as my blood was taken because the nurse was able to draw it directly from my P.I.C.C. line (I don't usually watch because I don't like to see the needle in my arm).
Grace came with me to the General hospital and was blowing kisses to the nurses, volunteers and the other patients in the chemo ward waiting room. She learned to do this the other night and now can't get enough of it. It was a riot. Everyone was laughing which just encouraged her to keep going. She's the light of my life.
Tomorrow is chemo. I hope it goes as well as last time, if not better. My personal nurse says there is no reason to expect it to be any worse than last time for the next 3 sessions. I'm going to picture the chemo drugs shrinking and disolving my tumor until it is nothing.
LOVE! Daiva :)
Tuesday, June 2, 2009
HER-2 Possitive
I had an appointment with my oncologist today - or I was supposed to, she was out of town so another doctor was filling in who wasn't even an oncologist. The appointment was uneventful until I asked if the results came back concerning my tumor's receptors (a test to see if the tumor reacts to proteins or hormones). I'm her-2 positive. The doctor who told me this news couldn't really answer any questions...she was a family doctor. I've done some reading up on this and I think that this means (in VERY simple terms) that my tumor over expresses a protein that helps the tumor cells grow and multiply. This means that my tumor is more aggressive than someone who isn't her-2. In the past this would mean that my chances of having cancer that would spread or reoccur were high, but now they have drugs and treatments which can bring my odds back down to (and perhaps below) those who are her-2 negative. The bummer is that I will be on a drug called Herceptin that will be given via IV every 3 weeks at the Chemo Ward for 18 months!!!!!! The first Herceptin treatment would start along with my 7th chemo treatment (sometime in September)....18 months from then would be March, 2010...that is when I would be finished all my treatments.
Because I will need a line into my veins for a long time I will be getting rid of my P.I.C.C. line and getting a Port line instead. A Port is a disc inserted beneath my skin around my left collar bone with a line running from the disc through my vein towards my heart. Then, when I need a chemo or Herceptin treatment the nurse locates the disc and pops the IV line through it. I will be able to swim and pick Grace up again with my left arm but I will have a 3 inch scar once the disc is removed. It will rub against my seat belt and it will bother me when I sleep on my stomach. The disc has to be surgically inserted and it looks like my procedure will happen the week of June 23rd. If that's the case then I will be able to get this darn P.I.C.C. taken out soon after this next chemo treatment.
In other news, I am having a terrible reaction to the dressing over my P.I.C.C. I've got a red bumpy rash that is so itchy that it drives me crazy. The nurse is switching my dressing over to a new one that has less reaction but also less adhesion. Good thing this won't be a concern for long.
Because I will need a line into my veins for a long time I will be getting rid of my P.I.C.C. line and getting a Port line instead. A Port is a disc inserted beneath my skin around my left collar bone with a line running from the disc through my vein towards my heart. Then, when I need a chemo or Herceptin treatment the nurse locates the disc and pops the IV line through it. I will be able to swim and pick Grace up again with my left arm but I will have a 3 inch scar once the disc is removed. It will rub against my seat belt and it will bother me when I sleep on my stomach. The disc has to be surgically inserted and it looks like my procedure will happen the week of June 23rd. If that's the case then I will be able to get this darn P.I.C.C. taken out soon after this next chemo treatment.
In other news, I am having a terrible reaction to the dressing over my P.I.C.C. I've got a red bumpy rash that is so itchy that it drives me crazy. The nurse is switching my dressing over to a new one that has less reaction but also less adhesion. Good thing this won't be a concern for long.
Sunday, May 31, 2009
Two big events
First Big Event
On Friday morning I went to the Women's Breast Health Centre to have a clip insertion. This means that, with the help of ultrasound, the Radiologist inserted a clip (a stainless steel object about the size of a grain of sand) into the center of my tumor. The reason they do this is because if all goes well the chemo will completely dissolve my tumor and then the surgeon will use the clip to know the exact location of the tissue he needs to remove.
It did hurt. I found out afterwards from the nurse (she says they never tell patients this before their diagnosis) that it is very difficult to freeze malignant tumors. Now that I know this I understand why I felt some pain during my original biopsy.
I also had the Radiologist use the ultrasound to examine my lyph nodes for a second time. There is some confusion as to whether my nodes are inflamed or not (the original u/s says no and the MRI says that 2 are bigger than they should be...but I had a flu just before the MRI that could explain that). The new u/s showed that my lyph nodes look just fine. This is really good news because if the cancer spreads to any nodes then that could mean the removal of quite a few of them which can permanently effect my arm movement and cause lyphodema.
Second Big Event
My hair started falling out Friday evening. When I would run my fingers through my hair I would have around 20 hairs in my fingers. Grace would tug at my hair and she would pull out a hand full. So, Saturday morning I made an appointment at Carolyn's Salon (a spa on Merivale Road which specializes in various hair loss issues and the place where I bought my wig). Grace and my mother came with me for emotional support and watched as I had my hair chopped off and then got a buzz cut. I cried a little...I knew I would. The hair stylist, Michelle, was fantastic and very understanding. I donated my hair to Angel Hair which will make a wig from my locks and donate it to a child at CHEO whose parents can't afford to buy a wig.
The picture to the right was taken after I stopped crying. My hair was thick and long enough that they will be able to make a complete wig with my hair alone.
How does it feel? GREAT!!!! My head is so much lighter and cooler. I love the feeling of my brush cut (although all the hair will fall out in a couple of days). When I take a shower or lie down on my pillow my hair isn't getting in the way. I've already started to steal Kevin's baseball hats.
On Friday morning I went to the Women's Breast Health Centre to have a clip insertion. This means that, with the help of ultrasound, the Radiologist inserted a clip (a stainless steel object about the size of a grain of sand) into the center of my tumor. The reason they do this is because if all goes well the chemo will completely dissolve my tumor and then the surgeon will use the clip to know the exact location of the tissue he needs to remove.
It did hurt. I found out afterwards from the nurse (she says they never tell patients this before their diagnosis) that it is very difficult to freeze malignant tumors. Now that I know this I understand why I felt some pain during my original biopsy.
I also had the Radiologist use the ultrasound to examine my lyph nodes for a second time. There is some confusion as to whether my nodes are inflamed or not (the original u/s says no and the MRI says that 2 are bigger than they should be...but I had a flu just before the MRI that could explain that). The new u/s showed that my lyph nodes look just fine. This is really good news because if the cancer spreads to any nodes then that could mean the removal of quite a few of them which can permanently effect my arm movement and cause lyphodema.
Second Big Event
My hair started falling out Friday evening. When I would run my fingers through my hair I would have around 20 hairs in my fingers. Grace would tug at my hair and she would pull out a hand full. So, Saturday morning I made an appointment at Carolyn's Salon (a spa on Merivale Road which specializes in various hair loss issues and the place where I bought my wig). Grace and my mother came with me for emotional support and watched as I had my hair chopped off and then got a buzz cut. I cried a little...I knew I would. The hair stylist, Michelle, was fantastic and very understanding. I donated my hair to Angel Hair which will make a wig from my locks and donate it to a child at CHEO whose parents can't afford to buy a wig.
How does it feel? GREAT!!!! My head is so much lighter and cooler. I love the feeling of my brush cut (although all the hair will fall out in a couple of days). When I take a shower or lie down on my pillow my hair isn't getting in the way. I've already started to steal Kevin's baseball hats.
Thursday, May 21, 2009
My Fabulous New Hair
A synthetic wig means that I can't stand too close to BBQs or ovens or else the fibres will melt, but it also means that I will NEVER have to style it as it will always dry back into its original shape after I wash it.....YAY! Don't ask me how much it was.
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